Nate and I seem to put on a good face for everyone and most of the time that reflects our attitude but let's be honest...this recovery thing has turned out to be harder than we expected. It has been a roller coaster of good and bad days and Nate keeps telling me he's waiting for the good ones to outlast the bad ones.
Nate is still being seen in Denver once a week. He will have 2 weeks of good labs and then a hiccup. At his last appointment on Monday his creatinine levels were elevated again. A kidney ultrasound was done and it again shows fluid around the kidney. This is likely to come from the old kidney's being removed. BUT the kidney IS stable. Today Nate is going through a procedure in which they will insert a balloon into the peritoneal cavity to create a "window" in hopes the fluid will drain out the window instead of staying around the kidney. We are in hopes that this procedure works. If not another surgery will be required. One step, one day at a time.
Nate still tires easily and the anti-rejection medications have tons of side effects. (Tremors and irritability to name a few)
This situation reminds me of a quote I have kept written down in my office.
"Every thing's not OK but I am OK with everything."
We struggle, the kids struggle but we push forward to the light at the end of the tunnel.
We continue to thank everyone for your love, support, thoughts and prayers but more than anything for putting up with us. :) :)